by Jessie Cooper | Aug 4, 2022
This past weekend I celebrated the 10th Anniversary of Instructional ABA Consultants. 10th! It is hard to believe that a decade ago, with no business experience whatsoever, I founded this company. A decade ago I was 25, clinically talented, and pissed as hell that my clients with state funding were not able to access services.
I celebrated our 10-year anniversary by walking into our Oak Lawn clinic and meeting the first Medicaid client in our company on his first day of ABA therapy. A decade later we are still on a mission to provide access to care across funding sources. The difference (among many) is that a decade later I stand with my work tribe leading together; it is not just me anymore. It’s us building my business.
There are many times I look at myself in disbelief. It’s hard to imagine that fresh out of graduate school with a new degree and passion I would be able to forge my way into the creation of my company. At the time I was fearless. I simply saw that there were thousands of individuals with autism and disabilities being denied care in Illinois because of their funding; medically necessary care. Money, not humanity, was making the decision for them.
Life Changing ABA Funding
As a clinician, I knew that applied behavior analysis was/and is life-changing. It is a science that seeks to understand why an individual has a barrier to learning & communication and can use maladaptive behaviors instead. Each client I worked with before founding Instructional ABA Consultants had something to say and the science of behavior analysis gave me the tools to listen.
The tools to listen to a child who was non-verbal but wanted to speak. To listen to a blind man and hear he was hitting others because he was scared when they approached him from behind. To listen to an adult with autism who routinely hit his peers because his feet hurt and he needed new shoes; he was in pain. And tools to listen to the parents who had willingly signed their children up for residential care only to find their children malnourished, abused, and traumatized. To hold all of their hands with care and kindness while offering them treatment that worked.
Yet this treatment was short-lived. When the crisis ended and our team was discharged the treatment program ended. The clients were left to live a life without ongoing care, their parents at the mercy of a system without the type of therapy and care their children needed. What might have seemed impossible to others seemed so simple to me. These families have state funding, I have a license and the science they need. Why not just put the two together? That is exactly what I did.
Making Positive Changes Yourself
In the beginning, Instructional ABA Consultants was just me and a caseload of perhaps 20 clients. I knew then that I would have to learn about how to scale my own services by building an organization that had my mission at its heart and the science implemented correctly. These past 10 years have been a journey. I have learned more about myself and how to run a business than I ever thought possible. I can tell you more someday I’m sure. But for now, the most important thing that I have learned is that as a leader listening can never stop.
The key to positive change, whether it be for a client or for the capacity of the organization itself, is just that; listening. The systems and clinical programs surrounding both the organization and the clients should always have the needs of the clients and employees at the forefront–at its heart. I have been lucky enough to have built a leadership team whose hearts emulate the mission of IABA (and people who are easily smarter than me). They also know that listening first and then creating is the foundation to our success. All of their incredible skills are used daily because of this culture and a decade later I sleep with a full heart knowing that hundreds of clients are served in the same capacity they were when I was doing it myself a decade ago.
Fighting for Basic Needs
To top off my celebration, after a good margarita, I watched “Crip Camp” on Netflix with my partner. It is a documentary about the development of the Americans with Disabilities Act and the incredible leader Judy Heumann. The documentary begins by talking about Camp Jened, which ran between 1951-1977. It was a camp for disabled teenagers that created an environment where they were treated the same as their abled peers. It was a place where they were allowed to be regular teenagers and have their voices heard. It’s heartbreaking but also true that this was not their experience outside of the camp.
Following her time at the camp, Judy Heumann became an activist who ultimately not only got the ADA enacted but also implemented. In the film, when asked how she did this, her response was simple, “I listened to the stories of my fellow Americans with disabilities without question; if they told me about their experiences I knew it was true.”
That right there is it. I’m a small fish in the big sea of life but if Judy could pass the ADA Act and over 60 years later I could start and successfully run my company by simply listening, then I know that this is a tried and true method of change. I look at our local news each day, as well as my own experiences, with a bruised heart. I am hurt by the loss of humanity in the systems that suppress us. I do not have words to describe my grief for the darling ten-year-old girl who was raped and now is part of the national focus of hate and questioning. This is not the way.
The way to rebuild our world and the systems that support us is not by challenging the experiences of our fellow human beings. The way to build just about anything is to listen. Listen, believe, and do something. Even if that something is just to make your small corner of the world a better place.
Xoxo,
Jessie Cooper
by Jessie Cooper | Jul 21, 2022
Two weeks ago, after the overturning of Roe vs. Wade, I wrote to you for the first time in months. I shared with you that over these past two years I had felt as though I’m living in purgatory. That life was going on around me while some very real and hard events surrounded both my personal and professional lives. I have also found gratitude and joy along the way, the light within a dark time in my life that has made it palatable to continue moving forward. It was the light breaking into darkness time and time again that reminded me it is our goodness and humanity that will create the change we all so desperately need.
What kept me frozen was having a front-row seat to see a corrupt system up close for so long. If I am ever able to share my personal experiences many of you would not believe me I am sure. Yet, if you have told me that as women (and individuals) we would lose the right to abortion and that making birth control illegal (in Ohio, where I am) is now on the table I would not have believed you.
There are people in power using their power to obstruct and restrict justice in widespread ways. These people in power have created an ignorance amongst the population to support their wide-reaching attempt to take control of our lives. Insidiously, like a frog boiling, the legal system of our control has planted fear in an attempt to keep us all small and steal our rights.
No. Fucking. Thank you.
Liberty and Justice?
In witnessing what has occurred and is now the reality of millions I say “there is more coming.” The overturning of Roe vs. Wade is the tip of the iceberg, the canary in the coal mine telling us that something is incredibly wrong with our government. As Amanda Doyle says, “The walls of our justice system will need to be rebuilt before we can have any type of roof.” The foundation of our country was liberty, yet the system is run by predominantly white men. Over 200 years later it is clear that this liberty was only designed for them.
It is painful to witness what has occurred in this country, what has been taken away, and the manner in which decisions are made. What I do know to be true is that if fear keeps us small and stuck, bravery can unearth this oppression. I also know quite personally that the fear feels paralyzing when your own safety and freedom are directly at risk. I have been told more times than I would like to admit that I turn into a controlling, crazy, type A bitch when speaking for my own safety and freedom. What I hate to admit is that I stayed in this gaslit narrative far too long and questioned my own behavior and what I was doing wrong. The answer was nothing. The answer is still nothing.
I listened to a We Can Do Hard Things podcast this week that featured Natalie Portman. I loved her before but now I know my girl crush is 1000% justified. Natalie didn’t speak as an actress, she spoke as a woman in a leadership position of her experience inside the industries she is involved in. During the podcast, Natalie reminded me that as women we are all facing prejudices if we dare to speak or lead. Natalie shared her experience that when she experiences gossip in the movie industry that it may be a red flag of an assault that may have occurred. That, if a director is saying a woman is a difficult actress, she listens closely, not to his words but to the warning, which basically says ‘this woman doesn’t put out.’
As women, we must listen to these warnings and speak out against abuse, tyranny, and the restriction of rights. That, if a woman is called a bitch, controlling, or difficult, we immediately think~what could have happened to her?”
Reshaping the Narrative
The gaslighting of our society and the hot and heavy fear breathing down our necks must end. We must stop the insanity of believing that, as women and/or individuals, somehow we are wrong, difficult, and overbearing after we simply speak our minds. While I agree with Amanda Doyle that we have new walls to build, I would like to add we have a few more to knock down as well.
Yes, these wounds are difficult to look at and these wounds tell us where to heal. Just like my once broken body, our country’s wounds tell us as a nation what we must fix.
I started writing this two weeks ago and didn’t know where to start; that it felt like too much. Then I remembered, “The Blueprints of Heaven are in the Hearts of Women.” All we have to do is face the fear, tell it, that it cannot keep us small, and demand our justice and the justice of our children. Side by side, arms linked, we can do this together.
Xoxo,
Jessie Cooper
by Jessie Cooper | Jun 30, 2022
Over the past two years (and counting) I have lived through events that have bore incredible pain, as many others have. If you had asked me in March of 2020 if even a fraction of what I experienced would occur I would not have believed you.
I often have described these past two years as purgatory or limbo; life was going on around me but I was stuck in time. Event after event transpired yet the hardship of my own reality was unchanging. During this time, when the universe dealt me that painful set of cards, I was reminded that through our wounds we heal.
I couldn’t stop several grievous events from happening or even prevent how other people were treating me. What I could do is pay attention to the loving & extraordinary people in my life, love myself with my whole heart, heal, and witness the system around me. It was through this process that I was able to start healing my wounds. It was also through this process I saw how damaged our legal system and many related parties are.
The Injustice of the Justice System
I witnessed how power, control, status, money, and fear are the status quo. At first, I fought and screamed against this. Then I realized that the screaming only made it worse. This is how I learned to witness–to surrender–to the system that would now make life-changing decisions for my life and my children’s lives. I realized freedom I thought was mine I never really had in the first place–I was just privileged enough not to have to enter the system before.
Waking up this past weekend to the rights of women being stripped away across the country was sobering but not surprising. Through my own witnessing and observance of our legal system in action, I am able to see this for what it is. As I’ve said before and will say again; power, control, status, money, and fear.
It is sickening to think that these base human qualities are making decisions restricting the rights of women, yet it is our reality. While the restriction of abortions is by far the largest power play we have seen in decades, power plays to remove our rights and increase the wealth & control of others have been happening in front of our eyes for decades.
Staying Positive
I still believe that the majority of human beings are good and have more in common than not. Yet so many of us have become disconnected (myself included) from the legal system and the politics around us. I don’t know about you but the word ‘politics’ comes up and my gut reaction is to tuck and roll; to avoid the conversation. My instinct to avoid the conversation is because, to me, politics equals arguing and conflict that ends up with inaction and everyone upset at Thanksgiving.
I wonder now if this wasn’t a ploy to keep us all away from the system, to keep us away from being a part of the conversation? Seeing what I have seen now, I wouldn’t put it past anyone in a position of power in our country. Because if we are all fighting with each other we are not paying attention to them and when we’re not paying attention elected officials who have no right to lead us, let alone speak for us, are running the country for their own selfish gains.
What if we all paid attention? What if we all listened to each other? What if we all stopped arguing and began to witness the system in front of us for what it is? Could it change? I think it could. I also think, much like my own experience, bearing witness may be painful because we will have to look at the wounds of our country. We will have to ask, “Baby, where does it hurt?” We will have to listen to the oppressed, listen to the wounded, and hold space for each wound so we know what needs our attention.
Broken System, Unbroken People
The system is broken, overrun with greed. But we are not broken. We, the people beneath the system. The overturning of Roe vs. Wade is a national wake-up call, shining a light on people in power who should in no way be in power. Six people took away the rights of millions. Six.
I do not know where to start, truly I have to google it. What I do know is that being a bystander in our country is no longer an option. The conflict of politics is not an excuse not to get involved. I can no longer say it’s not for me because this system is taking away my, your, and our children’s freedom. It will require strength, care, and humility. It will require knowing ourselves so we know what we will and will not stand for. It will require learning and unlearning. It will require kindness, strong boundaries, and grace. Trying and failing, then trying again.
Wounds allow light to come into the darkness when we are brave enough to heal them. “Hate, it has caused a lot of problems in the world, but has not solved one yet.” -Maya Angelou. We can either spend the rest of our lives fighting with each other about disagreements, differences, and what we do not want in our policy or we lean into love, listen, take action, and ask what we want. There is kindness in so many of us, our love is stronger than hate. We can make a change we want to see but it will take all of us.
Be brave, band together, listen, heal, and move to action. Be the change you want to see.
Xoxo,
Jessie Cooper
by Jessie Cooper | Mar 31, 2022
Over the course of that last month, I’ve written to you about finding joy amidst hardship, living through pain, leaving domestic violence, and navigating fear. This is not a light load for anyone to take, let alone write about. Outside of my own personal experiences, I know that the people I love (and the world) are carrying hardship too.
LIfe has always had joy, pain, happiness, sorrow, and other dualities. Add a 2+ year pandemic to any of those feelings and we have an additional ongoing hardship to navigate in addition to life being, well, life. How are we surviving and how can we thrive during this time? I don’t know the answer to that but I do know that taking care of our own hearts, bodies, and spirits is truly the only option to get through it.
Taking Care of Yourself
I’ve been a healthcare professional for longer than I’d like to admit (15 years and counting). Over the course of my time with an active caseload, I cannot tell you how many times I repeated the age-old line “you have to put your oxygen mask on first!” when talking to exhausted caregivers of children with behavioral disorders. Fast forward a decade to when I became a mommy and joined the bandwagon of “self-care isn’t selfish, really!” as I carved out time for myself to have enough capacity to raise my little men. Talking the talk is easy to do and going through the motions of self-care has also been extremely publicized over the years.
Need more you time? Pour a glass of wine. Exhausted? Slip into a hot bath. Don’t miss the gym! Press that green juice. Where is your yoga mat? Society and marketing firms have a list of activities that we all can do in order to recharge our batteries and put ourselves first. While we might actually enjoy some of these activities, these slogans and lists completely miss the mark.
You see, all the slogans are telling us that we could actually be more perfect at taking care of ourselves in addition to a mounting list of things to do in order to live the ‘ideal’ life. Perfectionism is not in short supply these days. Neither are product lines nor marketing companies that profit from our deep dives into perfectionism and trying to be ‘good enough.’
In short, the way society (and I) used to talk about self-care is a one size fits all methodology, but one that can actually leave us more exhausted than relaxed. But self-care is really important, and recharging is essential during well, life, and times of high stress. So how do we fill these needs for ourselves? How do we take care of our beautiful but exhausted hearts, spirits, and bodies? My first piece of advice has literally gotten me through my entire life (the good, the bad, and the ugly). Ready for it? My mother would be shocked. Don’t listen to anyone. Like anyone.
Listening to Your Real Needs
I mean I can apply “don’t listen to anyone” to most facets of my life (it’s not always right!) but in regards to self-care I know I’m on to something. How could anyone from the outside world tell you how to take care of yourself when our needs as humans come from inside of our bodies and spirits? The only voice that can actually tell us what we need to recharge is our own. When we need it, how we need it, what feels good, what doesn’t, and so on. Self-care looks like being a guardian of your own energy and putting what your heart, spirit, and body need before the needs of others. Yes, even your children and especially every other person you love.
In a world where we are buzzing and being “so busy,” simply saying, “firm no,” to anything and anyone is the first step to listening to what you really need. It’s impossible to be honest with yourself if you do not make time for yourself. Self-care isn’t a status, it’s a way of being, one that I needed to be more honest with myself about recently. Burning at both ends has been my status quo for well over a year (OK, more than 5 years). Then I remember the wise voice inside of me that wished for my health and happiness above all else. Then I remembered to sit down and listen to what I really needed.
For me, I needed more time with my friends and family and more quiet time to reset on my own. It was a balance. I also needed better food, less sleep (I was over napping… a lot), and finding time to be quiet in my own body (so I did sign up for some yoga classes). I’m not fully re-energized yet but each morning I remind myself I am my own guardian and that I’m worth it. Trauma comes, hardship comes, and our hearts, spirits, and bodies need us to care deeply and kindly for them as we navigate our own personal pain (or just a bad day). We all need a little more kindness starting with ourselves.
It is only in taking care of ourselves that we can care for others. I won’t go all oxygen mask on you but I will challenge you by asking you this, “what hurts, what is tired, and what do you need?” Turn off the noise of the outside world, tune into yourself, and find out. It’s a journey worth taking, I promise.
Xoxo,
Jessie
by Jessie Cooper | Feb 24, 2022
Last week I wrote to you about life being beautiful, even when it is hard after yet another winter in COVID and the extension of my divorce. As with many of us, these past two years have been full of pain for me alongside joyful moments. Leaving domestic violence saved my life and began to lay the groundwork for my children living free of abuse. Yet the system in which I am divorcing poses its own challenges as many systems do.
Living through the pandemic, alongside my family and friends, has also been traumatizing not only for me but for the people I love. As yet another winter rolled in with no change to the stressors around me, for the first time in a long time, I was able to see that pain is part of life and oftentimes it is out of our control. I’ve often written about fear as a guidepost, but the acceptance of the pain that true trauma and hardship bring is real. I’d like to say more.
Accepting Emotions
As a small child, I thought that life was always supposed to be happy and that happiness was the destination we were all working toward. I was taught, as a girl, to modify my emotions to keep the peace and others comfortable. Any type of negative emotion was seen as something to be avoided and punished. Being uncomfortable or causing discomfort seemed to be a cultural “No” for women where I grew up.
I am lucky enough to have a mother who at home allowed us to feel our full range of emotions (and I had a lot) but even with this outlet, I was conditioned to feel shame over negative and loud emotions that often came from fear, pain, and my experiences with injustice. Happiness was where we were all going and how other people deserved to feel. The full range of negative emotions I felt (and still feel) were not welcomed and are still not welcomed in many places.
You see in a world where comfort and happiness are the prizes, discomfort is seen as the enemy. We are sold an awful lot of bullshit from the stories politicians tell, social media, and marketing firms about how to stay small and comfortable. Feel pain? Vote for me and I’ll fix your suffering. Feel pain? Follow my beautiful life on Instagram, then copy it. Feel pain? Buy another…fill in the blank to numb it. Feel pain? Just pour another glass of wine mama. All these ‘solutions’ when the real answer is, “feel the pain; first nurture your own heart and soul, then ever so slowly step back into life.”
Pay Attention to You, Not What the World is Telling You
Our society is gaslighting us by telling us that life is supposed to be warm and fuzzy all of the time. If we question our own discomfort, leaning into how we feel, we are challenging the system of power that is designed to keep us small. In my recent experience, if you speak loudly about discomfort (like domestic violence) shame is rampant because speaking about pain makes other people uncomfortable. I can write with 100% certainty that other survivors have had this experience when they have spoken about their abuse. Perhaps, in my lifetime, that percentage will decrease.
But here’s the thing. None of us, none of us, go through life in a bubble feeling happy all of the time. Happiness is fleeting and if we are using it as a meter for our life we will in fact miss our lives. Joy is a long-lasting emotion that can live with pain. I’ll write more about this later, but today we stay with pain.
How many of you have been raised to believe that pain is a scary, avoidable emotion that needs to leave your life as quickly as it came? And how many of us have had life experiences that are outside of our control that caused the pain? I’m guessing all of us. At the end of one of Glennon Doyle’s recent podcasts, her daughter Tish Melton sings. One line in the song has stuck with me week over week. “I hit rock bottom, it felt like a brand new start. I’m not the problem, sometimes things fall apart.”
This line stays with me because so many of us are not only told to avoid pain but told that when bad things happen it’s our fault especially when we are talking about abuse. Or that if we are feeling pain our job is to hide the pain to keep everyone comfortable, because everyone else being comfortable keeps us safe. It’s a loop that ultimately leads to shame and, as the brilliant Brene Brown writes, “the only way to eradicate shame is to talk about it.”
Pain & Shame
So, if pain and the strong emotions surrounding this pain are part of life, why should pain something to be avoided? The real answer is it should not. Pain is just part of life. It’s nothing to be ashamed of. It’s not something we need to race past to get back to happiness. It just is.
And alongside pain just being part of life, joy is also a part. Sitting with pain and allowing others to know about your pain heals your own experience with pain and, in cases of abuse, can save the lives of others when you speak out. The more we allow pain to be part of life, the more we can tackle head-on what is working in our lives, how to nurture ourselves through life’s challenges, and how to protect others from the pain others are trying to inflict on us. The small subset that is.
It’s OK to say what hurts. If we swallow our pain and push on into, “fine,” just to demonstrate we’ve won the golden ticket of happiness we will in fact miss our own lives. Pain happens. Hard times happen. How we navigate the pain is not only the roadmap back to our own hearts but will help to build a more true representation of the human experience.
If you are living in a situation where pain is happening because another person is causing it, this type of pain is not OK and not what I am writing about. I am writing about the pain that comes from feeling our own emotions and human experiences. If another person is hurting you, in any way, the kindest thing you can do for yourself is to leave. Yes, it will hurt, but that pain is worth it. The pain you are feeling from abuse is never, not ever OK.
Pain within is a compass. It tells us how to care for ourselves and how to leave what is no longer serving us. Happiness is a guise as a final destination. Freedom is what we all deserve. Freedom to be who we are, feel what we feel, and live our lives as close to our soul as possible.
I don’t know about you but I’m not raising my little men to be happy, I’m raising them to be free. Free to feel every part of their human experience knowing that first mama and then their own hearts is a safe space to land.
Xoxo,
Jessie
P.s. This one’s for you Kiki
