by Jessie Cooper | Sep 16, 2020
Okay, so I’m beyond excited to write this blog. It’s short but it’s a good one! I mean, I know I tell you week after week that I’m loving writing but this week I get to do one of my favorite things; dream.
Ever since I was a little girl I would spend hours a day dreaming about what I could create. As a child, it was more whimsical dreams, like “Wouldn’t it be cool if we built Japan for our Barbie dolls?” On a side note, we did this among many creative and scrappy things. Today that dreaming is still in me but I’m using it for the real world.
When I wrote to you all at the beginning of August I alluded that I’m building a new chapter in my life and company. I can’t wait to tell you more! But today is about you and all the parents we support. Today is about dreaming together.
Turning Dreams into Reality
Instructional ABA Consultants was built on my dream over eight years ago. It was all about building an inclusive company for children with autism and adults with disabilities. I was (and am) on a mission to close the funding gap that causes the disparity in service models.
I also wanted a place where Board Certified Behavior Analysts, now Registered Behavior Technicians, and our administrators could be fully supported in their work. I’m no dummy, my employees are my most valuable asset and deserve to be treated as such. They are also human beings and you all already know how I feel about equality, humility, and grace. This was my dream, I’m living it and just like any good dream, I’m adding to it.
I’m in this awesome space at work. We’re dreaming, building, and preparing for the next steps at Instructional ABA Consultants. We’ve gotten the ABA thing down and our clients have come to expect a one-size-doesn’t-fit all treatment plan and therapists providing care with their whole hearts. What we also know is that in behavior analysis our client is not just our client. Our client is also anyone who surrounds the client. For kids, that’s their family. That’s what I want to write about.
As a mama, the amount of resources that I need to wrap myself in on a daily basis is incredible. Prior to having kids, I wish someone would have told me the luxury I was living in. Things like waking up when I want, going to the bathroom by myself, going to the gym, leaving the house, you know basic freedoms. Day after day I’m presented with challenges in how I want to parent, what I want for my children, running a home & a business, and being plain human. I burn out, tune in, recharge in some ways, and start the next day all over again.
I also know I’m very lucky to have resources I can plug into academically when I’m struggling and a loving community personally. I also know that a huge part of my success and evolution as a human comes from asking for help and connecting with others. I’m curious about what you need and want if you’re a parent of a child with autism. You see I’m a mommy but I’m not a mommy of a child with autism. I need your voice.
In a therapeutic relationship you’re used to us serving your child but what about you? What additional support do you wish for from a therapy company? Is it an online platform to connect with other parents? Is it in-person (I mean COVID, but you feel me, right?) parent groups for both mom and dads? Is it educational nights? Date night outs? Self-care workshops? A playdate forum? More company events the kids can come to? More training from us about ABA? I could go on and on because as I’ve told you I’m a dreamer.
ABA and Your Dreams
But what about you? If we at Instructional ABA Consultants added a Community Corner what would be there for you? While I can’t promise to build everything I can promise to listen, really and truly. As I listen to our parents and readers I can get a better understanding of the wishes. Once I understand the wishes I can start seeing what is possible to build. I’m really good at building things, remember? And I just spilled that I love dreaming. I also thrive when I’m able to create.
I hope by reading this today you feel inspired to tell me what supports you’re looking for. I’m building a Tribe for us, so it’s best to start by hearing from the village.
Xoxo,
Jessie
by Jessie Cooper | Sep 9, 2020
Last week I wrote to you about the gift of applied behavior analysis to mamas and children with autism. I had every intention of talking about building a brand that works for mamas this week. Hang tight, it’s coming up next week! You see, when I sat down to write I realized I hadn’t finished the story from last week. Please let me try.
In writing to you last week I wrote about my little lion Henry and how applied behavior analysis helped him once again. As Henry’s mama, I’ve used function-based intervention with him since he was about 18 months (hang tight Declan! You’re 18 months this month baby boy). It’s been a wonderful tool I can use outside of work with my children, letting Henry know what behaviors will receive reinforcement and which won’t. ABA creates some really great boundaries we can operate from as a family. I noted last week that Henry’s behaviors had decreased by about 75% after returning to an ABA approach with him.
Changing Behavior with ABA
What I want to write about today is the other 25% of Henry’s decrease in behavior. Let’s get going!
Now to start I want to let you know this will be controversial. In applied behavior analysis, we would look for the final decrease in Henry’s challenging behavior based on the success of his intervention. While this is correct, there is another piece to this I think is monumental if you are a parent running the behavior plan. To be able to truly change your child’s behavior I believe you have to re-evaluate both your and your child’s internal needs. We don’t talk enough about this in ABA.
When I became a mama something incredible in my awoke. In birthing both Henry and Declan, I chose medication-free births to stay connected with my body and babies as they made their way into the world. I know them because I’ve birthed them and my body knows them. Now please don’t get me wrong, children can be deeply connected to non-birth parents too. I’m walking this connection with my son Dametrius. What I’m saying is that as parents we all have a deeper connection than I think we often remember that can guide us and our little loves.
So back to the present, to today, and Henry’s other 25%. As his mama, I knew (and have known) that my own energy inside of the home contributes to his outbursts. When I’m able to stay calm and be grounded within myself I let off energy to Henry that he can be calm too. And that when Henry isn’t calm (or Declan, or Dametrius) that I won’t match his unrest with mine. I will stay in my peace. I set the energetic example of what I want to see in my home. I’m going to be real with you, I haven’t really been this example since October last year.
Pushing for Inner Knowing
On a very personal level, I’ve been going through something that is incredibly hard for me that I can’t fix or think my way out of. Trust me I’ve tried and it’s done nothing but create frustration in me. I’ve been holding onto an outcome that I can’t force and refuse to surrender to. I’m not ready to say what this situation is to the public but can say I’m going through something. What I realized this past week when I was working on being calm for Henry again was that I had forgotten myself and my deep connection with my children during this period of unrest. I had pushed my inner knowing and connection to my children’s inner worlds aside.
Have any of you been through something like this? A death, job change, loss of income, divorce, an international pandemic? I’m guessing I’m not the only one who has gotten lost in themself and forgotten to attend to their own inner world and children’s consistently. I know personally I feel a lot of shame around it. To break this shame I can name it and shine a light. That’s exactly what I did.
Stepping Back & Detoxing
In order to help Henry finish decreasing his bursts in behaviors, I took a huge step back. I’m actually still taking this step back. It will take time to detox all the stress I’ve been holding in my body and the same I’m guessing is true for him. I’ve made a choice to surrender the outcome I was so desperately hanging onto and notice when my body is operating in frustration or anger. Personally, I feel a little flicker of heat at the top of my head when I’m operating from this space. Once I notice anger has come I take a deep breath, close my eyes, and come back to peace in my body. Becoming calm and placing peace in our home is the most important thing I can do for my children’s alignment. To let them know uncomfortable emotions do happen and peace is always waiting afterward.
This step back into my own alignment helped me to look at my little lion beyond ABA. I immediately saw Henry was reflecting on controlling outcomes (holy shit) and demonstrating bottled emotions (double shit). While Henry, as a child, needs me to step in with an intervention on what behaviors aren’t OK, he also needed me to be his positive model, not the negative one.
So I surrendered and decided for a full weekend to sit in full alignment with my children. To put myself and them first. These past three nights Henry has found his way to my bed and co-slept which we haven’t done since babyhood. We’re hugging more, kissing more, laughing more. Declan still fills my days with giggles and hugs. He’s my lamb. Dametrius gives me an attitude and a smile that will break many women’s hearts someday. I’m a full-blown boy mama with a heart full of love for each of them.
To decrease the negative behaviors in my family home I had to lean into love for myself and through that love lean into loving them fully once again.
Xoxo,
Jessie
P.s. No burst from Henry three days and counting!
by Jessie Cooper | Sep 2, 2020
These past two weeks have been rough from a parenting perspective. It’s completely understandable. Our Henry’s defiant behaviors flared up big time during the move. I’ve done a ton of work in the past on myself to stay calm when working with Henry. In the middle of moving to a new state, though, I had zero reserves. I’m guessing I’m not the first (or last) mama to be emotionally entangled with my child’s disruptive behavior and also contributing against my own wishes.
Let me back up a bit. Henry is a strong-willed child. When he was a baby, about six months or so, we started sleep training (future blog here!). We would watch Henry on the monitor and you know what that little stinker did? He would watch the door to see if we were approaching, popping his pacifier in and out of his mouth, and when he heard us he’d flip over and start crying. I’m not joking! At just six months old. I knew at that moment I was in for a long parenting journey.”Buckle in Jessie,” I told myself, “this one is brilliant.”
Through Henry’s short lifetime he has met every milestone early and used each new phase in life as an opportunity to let us know why he knows more than us. From the crib into today. Henry believes Henry knows best.
I absolutely love this brilliance and fierceness in Henry. I tell him he was born to either save us all or take us all down and honestly I don’t know which one. Don’t worry–if he’s taking us down it will be systems that don’t serve us like his mama! Yet this fierceness in Henry also means he does not want to accept that grown-ups or his parents are in charge. As a child in our family, it’s our job to let Henry know what behaviors he can use to let us know his opinions and which ones he can’t.
It’s also our job to teach him we’re not on call for him 24/7 and sometimes no is no. All kids need this. This means that, in parenting Henry, I’ve put in more interventions that I can count. This does a hell of a lot of calming down my own nervous system (See “How Not to Lose Your Shit with Your Kids”) while parenting him.
Even the Best Parents Struggle
As a mama who is also a Board Certified Behavior Analyst (BCBA) I realize that I have a gift not all parents have. This is what I want to share with you! Let’s jump back to the present day.
Our family is in the middle of the move and I’m a wreck too. I wasn’t able to step back and look at my child objectively. While I did some simple things, like time outs, his behavior wasn’t getting better. The reason is I wasn’t being consistent with him and had no plan of action to follow in response to what he was going through. Now I know I sound all bookish here but let’s be real. The moment I realized I was in the weeds with Henry went like this.
We were at my aunt’s house, day two of our transition to Ohio. Henry was engaging in a ton of screaming when I asked him to do anything, followed by running out of the house without permission. This led to a ton of chasing. I also was trying to say yes whenever possible, leading to Henry thinking he had the green light to be in charge (which he happily took).
I decided to take my own advice and be present with him. I took my coffee outside and sat to watch him play. I was also reading while he was swinging to cool myself down.
…and then I heard my car horn beep.
I jumped up and saw Henry in my car pointing to something. I opened the door and to my horror, he had taken a shit in my car! He was honking to inform me. That was it guys. I was done. My emotional parenting (being a ‘yes’ mama & punishment for challenging behaviors) was not working. I asked my aunt to objectively observe our interactions. I also started listening to the Podcast “Unruffled” and running again.
Through this experience, I was able to reset my own emotional responding to Henry, cut myself a huge break, and put together a behavior plan for Henry. It took being calm, having outside support, and Applied Behavior Analysis to begin changing Henry’s current spike in challenging behavior.
One evening, after wine, I re-identified that Henry was still escape maintained, secondary to attention (ref. said shit story above). Hen’s plan is this:
- Mama & Daddy = increase attention & decrease demands (watch the number of requests we make, so when we make one Henry isn’t overwhelmed)
- Screaming = planned ignoring, let him feel his feels while not providing attention (positive or negative)
- Refuses to do something = escape extinction (follow through every time)
- Tolerance to no = positive reinforcement earns one star
- Listening behavior = positive reinforcement earns one star
Each morning we pick out a small prize (I got a 50 piece Pokemon set for 20 bucks) and through the day Henry earns stars. He needs 10 stars to earn his toy at bedtime. Through this little plan, we’re filling Henry up with attention and lower demands (attention/escape prevention) and then not providing him the consequences he wanted from his negative behaviors. We’re also rewarding him with what we want to see more of. It’s been a week and we’ve decreased Henry’s screaming and refusals by 75% already. Mamas, Papas–that’s the joy! That’s the message. ABA does work. It doesn’t all have to be poop in a car.
Applied Behavior Analysis (ABA) Therapy for Everyone
Applied Behavior Analysis is available to all parents when we need it. I’ve been in the field 12+ years and I forgot it during the move (give me a break! I was overly stressed too!) and yet, I was able to rely on it to create the change I want for my child and my family. I didn’t blame Henry’s behavior on his personality or developmental age. I took a step back and used science with self-care (remember I need to calm here) in order to shift our dynamic at home.
If you are having trouble with any of your child’s behaviors (um, yes please for all of us??), Applied Behavior Analysis is a wonderful tool to change behaviors by decreasing problem behaviors and increasing desirable behavior. It’s also the only empirically-based therapy for children with autism. If your child has a diagnosis of autism, ABA goes much deeper than I described above and studies the missing neurological milestones to decrease symptoms of autism over time. It’s this beautiful scientific gift to us all.
I hope by writing this I’ve spurred a little interest in all my readers to take a look at how ABA can help their family. And, if you need support for your child with autism, come check out Instructional ABA Consultants to see how my beautiful team of therapists can support your child.
Not in your neighborhood yet? Missing a service you’d like to see more of? Next week I’m coming to you to ask what you need. We’re expanding and building a brand for mamas. Starting dreaming mamas, I need you to build the best ABA-based company you’ve ever seen. We’re building a Tribe.
Xoxo,
Jessie
by Jessie Cooper | Jul 29, 2020
Last week, I wrote about our collective back to school blues. I’m still living through this; grief is a process and I don’t know that I’ll be fine for a while. In learning about all who are impacted by COVID-19, including my own children, I feel grief. Last night, I spent almost two hours on the phone with my aunt talking about homeschooling. In my heart, I want to pour every inch of my soul into Dametrius’s education. Also in my heart, I’m grieving that he may never know “normal.” From this paradox, I actually see a piece of myself. I’m going to share it with you.
That Nagging Feeling
Throughout my lifetime I have always had a nagging inside of me. The nagging says to me, “this isn’t it,” as I navigate life. While many people may equate this to anxiety and unsettledness, I know differently. This nagging inside of me is a combination of my knowledge and experiences and when I follow it I always unturn a new truth. The truths I find run the gamut from personal to professional but all of them guide me.
You see, I see the world differently, and when I follow the nagging feeling I can unpack both the loving-kindness and the lion inside of me. I think everyone has this nagging feeling inside of them and when I read “Untamed,” by Glennon Doyle it was confirmed. You may not be a lion but you know what is inside of you far better than anyone else in the world.
If we collectively listened to these nagging feelings, we could challenge ourselves and our leaders to unwind from a world based on fear and build a new one based on love.
So, back to my nagging, that piece of me that pushes me. My internal nagging has moved me through every stage of my life. It’s like a path I walk along, stopping for a while at a few spots to enjoy, fight, question, and then move on. I often meditate and see myself on a path with a deep light at the end. I know I’m walking toward that light in this life and not towards death.
During the beginning of the COVID-19 crisis, my nagging had me under its thumb. I sat in the middle of my beautiful home, with my dream career, 3 beautiful children, husband, and dear friends and I was utterly confused. How could this not be it? I had to sit and take a critical look at my situation to discover what was ‘wrong.’
What is Normal?
I was living in suburbia because the world had told me this was the goal and I listened. The world doesn’t know have my knowledge or experiences, so it occurred to me that I have been listening to the wrong authority for most of my life. Shit. Well, once I knew that I was listening to the wrong authority, a mental pandora’s box was opened in my mind. What else had I been believing as gospel because society told me it was so? Shit. Again. How can I unpack what is truly me and what the world is telling me is me? How can we all do this? And if we all do this, can we actually build a new world?
Deep inside of me, I believe the answer is “yes.” We can change the narrative. We don’t have to keep living in a world built on the foundation of broken systems and systemic disadvantages. There are solutions to our problems and those solutions are in our hearts. Believing in the goodness of people as a whole is the light I see in my meditations–where I want to go. And I want you all to come with me.
In order for me to honor my own nagging feelings, I had to thoroughly unravel my life. I sat with myself and asked, “well what now?” Answer number one? Get the hell out of suburbia, you hate it here. While a great many people love the suburbs, I am not one of them. I need the country like I need air to breathe.
I also need my sister and my family. Like, I really need my sister and family.
I buried both of these truths while I built a business out-of-state and settled into the suburbs. So, I asked my team at Instructional ABA Consultants, “Can I move home to Ohio and still be a good leader?” I got a resounding yes, followed by a fabulous discussion about what all my leaders needed in their own environments to thrive. They shared their feelings. I had no idea what most of my team really wanted!
I hope with all my heart Ingrid makes her way to Paris while running our company! I know that woman can do it. Once I got the resounding message of “it’s OK, we’ll support your dreams because you are honoring ours,” I told my husband. His feelings aren’t there yet, but he’s working hard to find his own truths so when I change things up it won’t be too hard for us. He told me (lovingly) that if Ohio makes me happy and I need the country he’ll follow me there. I know we’ll struggle through this as he finds his own truths and I am so, so grateful that he’s standing beside me.
Saddling Up & Moving to a Farm
Once I realized these personal truths, that life could go on, I started looking for farms. And do you know what happened? We bought a horse farm. A fricking horse farm!* A realtor was supposed to line up properties for us to see when we traveled in June. One night we got sent information on the farm we ended up buying. I pulled the info up and if I had drawn a dream home when I was five years old this was it!
The universe honored my newly discovered truths and literally planted a 3-acre horse farm in my lap. The kicker? It’s only twenty minutes from my sister’s home! My dad agreed to drive over and see the property and within 24 hours, against all logic, we bought the farm (literally). It makes no sense! I can’t explain it to anyone, yet my heart is telling me loud and clear to go for it. For the first time in my life, I’m saying yes to my true feelings and believing that honoring them will guide me through all odds.
After we made the choice to move, a lot of other factors have come into play, as other factors tend to do. When you make a big decision it impacts everyone around you. I will deeply miss my dear friends here in Naperville. I’m grieving for my dear friend Dana who has been raising Henry and Declan for the last three years while Martin and I work. I don’t think kinder soul than her exists in our world and when she finds her true feelings I’m sure angels will sing.
Living two states away from her won’t be easy, yet I know I’ve gained a sister through our time together. It’s hard to change course, to follow a knowing beyond ourselves, but I know that the light promised by following my true feelings is real. Yes, I’m sad to leave and yes, I know that in following my path I’m honoring myself and getting ready to light the world on fire. To do this I need the country, quiet, and family.
On my farm, I’ll get to truly be myself. I will joyfully get eggs each morning, grow a garden, can food for the winter, sew, sit on a porch swing each night, and swim in the love of my family all around me. I will get closer to nature because I don’t like the accepted ‘speed’ of the modern world. I might even write letters to my friends. It’s a mystery to me what day-to-day activities will look like, which makes this unplanned future even more exciting for me.
I know to be true; when I honor myself I honor the world and the same is true for you. Your truth is probably not a horse farm in Ohio. Your truth also isn’t what the world has been telling you to do.
My aunt in Colorado sent me a quote, so I’ll leave you with this, “Never, ever be afraid to make some noise & get in good trouble, necessary trouble.” – John Lewis
Xoxo,
Jessie
- *I can’t bring myself to drop the F-bomb in my blog. Maybe I’ll get worked up enough someday…
by Jessie Cooper | Jul 24, 2020
Last week I wrote about a new chapter in life for me. I’m so excited to be able to share this with you as it unfolds. I’ve got a lot to unpack, reveal, and share. This week for my blog I want to take a side step into my work and experience as a mama as we all make decisions for the fall.
This past week has been a collectively hard week for every mama I know. Across our country schools are announcing what they are choosing to do in the midst of COVID. Emotions are high for a variety of reasons. No emotion is invalid and yet for the space of this blog I want to be clear on one thing. If you are in an emotional space where your fear is expressed by lashing out at others this blog is not a space for you today. Unfortunately, I’ve been on too many Mom Groups who have behaved unkindly to each other and teachers because they are operating in fear. We are all afraid at some level. These are new times. I’m asking that my readers take a collective deep breath and hold space for each other’s fears and don’t take those fears out on each other.
Okay. Whew, now that we’ve cleared that up, I’m ready to write. As I’ve said this past week has been a rough one. A lot of what I’m seeing is defeat and despair. We’ve all been collectively navigating COVID since March and I think the true wish is that we would be farther along. I know a lot of people are wishing that all the efforts made during Shelter in Place would have taken us back to a reality closer to pre-COVID. Our truth today is we are not going back, and neither are our children any time soon. That in itself is such a hard pill to swallow.
Now there are a great many valid things to be frustrated about as to why rates of COVID are not contained in the United States. I honor those deeply. However, I don’t believe me listing them will help anyone personally. My reality is, alongside many, that Americans collectively could be making some better choices and those who do not have the ability to make their own choices (think shut in’s in assisted living facilities or our children) could benefit from our better choices. Until we’re able to get to a spot where we are collectively dealing with the virus, we’re left to individually navigate a world with new limitations. It’s scary and sucks plain and simple.
A large part of what I see weighing on the hearts of so many parents is what to do in regard to school this fall. District by district different choices are being announced. The choices so far that I’ve seen are entire remote learning, partial weeks, or full weeks in school with the option to opt out for remote learning. There are vague statements about face coverings and sanitation procedures. What we all want is certainty and I’m sorry to be the one to write this; I don’t think it’s coming. This year is going to be all about making the best decision possible for our own children or grappling with the reality that the decision is beyond our control.
My simplest advice is give yourself and your friends grace
So, what can you do? What choice can you make for your children in a pandemic? I wish I could tell you the best answer, to give you that certainty but I can’t. I don’t have this for me. I can give you my advice, the best I have today as a mama and educator myself. My simplest advice is give yourself and your friends grace. To realize we are all in this together do the best we can. My next advice, if it’s at all possible for you, is to choose the education plan that creates the least amount of change for your child. I say if this is possible because there are many families who have no choice in this. There are schools that are announcing all e-learning regardless and families who have to send their children to school because they are working. If the choice is beyond your control, then focus on what you can control. And, for the families that will financially suffer through this, I am so sorry. I wish this was not the case for you. I realize I’m incredibly lucky to be able to choose what I want for Dametrius this fall because he’s an older child and I can still work if he does e-learning. I’m also lucky because if he were younger I could afford extra childcare. I know this is my privilege.
Ok, so back to choosing the least amount of change for your child if that’s possible for your family. I believe that in coming out of Shelter in Place what we hoped for was some normalcy following the restrictions. Currently that isn’t happening and so our nervous systems are overloaded with the ever changing information and choices. It’s wreaking havoc on all of us. I literally just told my husband he couldn’t ask me to do things today because I’m overloaded, then I asked him to cook dinner. Martin responded, “so I can’t ask you anything but you can ask me?” I paused, then a deep sigh, “yes that’s exactly what I’m saying & I have therapy at noon.” God love him.
If we chose an education plan for our children that would remain the same regardless of restrictions ever changing, we can eliminate this nervous system overload (hello anxiety) and create some calm. By choosing a schedule that you will least likely have to change for your child you can eliminate some nervous system overload for your whole family.
Keeping children with ASD in mind
I also want to take a moment and speak for children with autism. Because, you see, constant change is harder than it is for neurotypical children. My recommendation to create a stable schedule triples when it comes to children with autism. The ups and downs of every changing schedule is a ton for them to process. If you are a parent of a child with autism I would strongly recommend to rely on therapy schedules and clinic settings as the primary structure for your children. We are ramping up our own programs in Castle Rock, Naperville, and opening up a South Side Chicago location this fall to address this need. These won’t change in the midst of COVID and will provide a wonderful way for your children to continue to have structure, socialization, and make progress. This was true prior to COVID but even more so now I think these clinic structures are important.
Okay, so now we’re gone through the choices. The limited ones we have. You’ve heard my recommendation to limit changes the best you can. Now what? Grace, grace, grace. These are not easy times. Collectively and individually we are all grieving. Downplaying what is individually hard for you does nothing to help us all through 2020. Remember I wrote about this before? Personally I’m incredibly upset that Dametrius won’t be going in person to high school. He is a beautiful person, new to our family, and I want nothing more than for him to make new friends and play football on Friday night. It’s not coming. I’m going to need to grieve this. Henry will not be making new friends, he’s stuck with us. I’m grieving this too. Declan, well, he’s 16 months (today!) and for that I’m thankful.
All individual fear big and small matter. Make the decision best for your family, give your great big heart a hug, and feel those feelings. Then call someone making a choice different than you and let them feel those feelings too.
Xoxo,
Jessie
